Coping Strategies of Parents/Guardians Caring for a Child with Autism Spectrum Disorder: a Phenomenological Study

Shaniah Shane N. Gante; Grace C. Lopez; Nikko Angelo A. Figueroa; Nissi Faith V. Ilumin; Hannah Patricia F. Encarnacion; Rizza Mae R. Hernandez; Aizee M. Duldulao; Diocelle Anne S. Eucasion; Adrian A. Ferrer; Mark F. Dela Cruz

Authors

Shaniah Shane N. Gante Nueva Ecija University of Science and Technology
Grace C. Lopez Nueva Ecija University of Science and Technology
Nikko Angelo A. Figueroa Nueva Ecija University of Science and Technology
Nissi Faith V. Ilumin Nueva Ecija University of Science and Technology
Hannah Patricia F. Encarnacion Nueva Ecija University of Science and Technology
Rizza Mae R. Hernandez Nueva Ecija University of Science and Technology
Aizee M. Duldulao Nueva Ecija University of Science and Technology
Diocelle Anne S. Eucasion Nueva Ecija University of Science and Technology
Adrian A. Ferrer Nueva Ecija University of Science and Technology
Mark F. Dela Cruz Nueva Ecija University of Science and Technology

Keywords:

Autism Spectrum Disorder, Caregiving, Coping Strategies, Phenomenology, Resilience

Abstract

Caring for a child with Autism Spectrum Disorder (ASD) is a profound, emotional, and life-altering journey that demands remarkable resilience and adaptability from caregivers. This qualitative phenomenological study explores the lived experiences and coping strategies of ten parents or guardians in Nueva Ecija, Philippines, who care for children aged 2 to 10 years diagnosed with ASD. Through in-depth semi-structured interviews and thematic analysis, the research identified three major themes: Walking on a Tightrope (the emotional and physical burden of caregiving), Designing a New Path (adaptive strategies and adjustments in daily routines), and Building the Bridge: The Way to Resilience (sources of support and personal growth). Participants described challenges such as stigma, fatigue, emotional distress, and identity loss, but also shared stories of hope, inner strength, and strengthened family ties. Coping mechanisms included emotional resilience, support from family and community, spiritual grounding, and adaptive daily routines. Over time, many families reported improved communication, increased emotional endurance, and stronger bonds. The findings highlight the importance of culturally relevant support systems, including access to therapy, family education, caregiver self-care, and educational support services. The study recommends the development of an ASD guidebook, creation of local support networks, and inclusion of mental health workshops for caregivers. These insights aim to inform educators, healthcare providers, and policymakers in designing effective, compassionate, and inclusive interventions for families raising children with ASD.

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